If you’re friends with me on Facebook, you already know this. On Sunday night, a little before 10:00pm, I had a seizure. My husband and I had been watching TV lying on separate couches, and he made a joke, looked over, and thought I was laughing. When he looked harder, he saw me shaking and thought I was choking. My arms had been crossed over my chest, and he picked me up (!) and tried to give me the Heimlich. I guess when he saw my face, he realized that I was having a seizure. He called 911 because I wasn’t breathing, and they talked him through everything and sent the ambulance within minutes.
I don’t remember anything except waking up on the ambulance asking where I was. They asked me my name, my address, my birthday: I couldn’t answer anything because I couldn’t remember. Slowly my memory came back to me, but it was surreal to be asked that, KNOW that I know the answer, but not be able to tell them.
Other than that, I don’t remember a thing about it. It was mostly traumatic for my husband, who really took the brunt of all of it. I did end up with some battle wounds: I bit almost clear through my tongue, twisted my ankle, and tweaked my back. I tried to nurse all of those yesterday, but I’m really feeling the brunt of the pain today. And not being able to sing, talk, or practice trumpet is KILLING ME. They say that the mouth heals faster than any other part of your body, so hop to it, body! I can deal with the back and foot (although they are pretty damn painful), but the tongue is just really an inconvenience for everything: the above mentioned plus eating, drinking, or brushing my teeth.
I’ve never had a seizure before and have no family history. The ER tests couldn’t pinpoint why this has happened, so we’re kind of on the hunt for what’s going on right now. The reason they are focusing most on is 1) my low iron levels and 2) that I may have bleeding ulcers again which triggered it. I don’t feel like I do, but they are doing an upper GI next week to be sure, and I have a consultation with a neurologist as well.
Thankfully, there was no repeat yesterday. I rested for most of the day, trying to keep my foot up and iced and my back as relaxed as possible. Jake, however, had to fix our plumbing. Not only did he have to be strong for me on Sunday and watch the entire thing, but he had to do hard physical labor yesterday. I just wanted him to be able to rest, but he has trouble doing that. I am so extraordinarily lucky to have him as my husband. Truly.
Today Jake went to work and I am home alone. I feel fine and I’m hoping nothing happens while he’s at school. Crossing my fingers that it was just a fluke thing, but also doing a ton of research today about seizures after weight loss surgery.
If you have a seizure as a post-op or know someone who has, please contact me. I’d love to hear anything you’re comfortable sharing: any medical info you have about WHY you had a seizure as a post-op, when it happened, any info your doctor may have suggested, etc. I just want to go in fully armed with info, because I know that almost always I have to advocate for myself as a wls post-op because doctors seem to know very little when I ask them questions. Thanks for your help!